(My name is Ross and my partner has hEDS. I’m her medical advocate and I’m sharing what I’ve learned along the way. I hope this helps. I am not a medical professional. This is not medical advice. Always consult a medical professional (preferably one who specializes in hEDS).
Pentad Super Syndrome (The Root Cause of hEDS)
Hotscratchers Advocates Guide to Surviving hEDS
How to support a loved one with hEDS
Common dismissive Comments People with hEDS hear
Complications From Late-Diagnosis
Blood Clots and Other Vascular Issues in hEDS
Periodontal Disease and Resorption in People with hEDS
Stomach Pain Misdiagnosis and Tethered Cord Syndrome in hEDS
Public Google Docs with Links to Resources & YouTube Videos